Introduction
What is TriNetX?
TriNetX is the global health research network that revolutionizes clinical research and enables discoveries through the generation of real-world evidence. TriNetX combines real-time access to longitudinal clinical data with state-of-the-art analytics to answer complex research questions at the speed of thought. The TriNetX platform is HIPAA and GDPR compliant
TriNetX has partnered with healthcare organizations (HCOs) spanning 24 countries and thousands of sites, and with data providers covering 99% of US health plans to deploy a linked and continually updated global health research network representing over 300 million patients. TriNetX has been used to analyze over 20,000 protocols and has presented over 5,800 clinical trial opportunities to its HCO members.
Free Access
Researchers at the University of Utah can access the TriNetX Platform, query de-identified data, refine query, analyze cohorts using built-in analytical tools, determine study feasibility, and download images of their query for IRB submissions and presentations for free.
Where does the data come from?
As of August 2021, 52 healthcare organizations (HCOs) from the United States and Asia-Pacific contribute patient data to Dataworks. Electronic health record (EHR) data forms the foundation of our datasets, but a growing number of additional sources supplement this EHR data.
...
More than 100 community hospitals
More than 500 outpatient clinics
More than 10 U.S. academic medical centers
Multiple premier U.S. pediatric hospitals
A center Center for cardiac care and cardiothoracic surgery
How much data do you have?
Data from over 73 million patients is are available to license and download.
Depending on the length of their record and pattern of care, each patient represents
...
diagnoses, medication orders, lab results, procedures, or clinical events tied to a specific date
demographic attributes like race or sex
genetic variants
tumor size and staging
Our over 70M patients represent 25 billion facts.
Data Format and Structure
What kind of files (and how many) will I get?
A dataset is made up of 18 comma-separated value (CSV) files, including a terminology table and manifest table, which you’ll download from our platform in a single compressed folder. Each file is a machine- and human-readable data table you can import into your preferred application.
...
Our TriNetX data dictionary provides a table-by-table breakdown of the data elements and their type.
Data Quality
...
From the data HCOs provide to us, we preserve all non-identifiable data.
Non-identifiable data cannot be traced back to a specific person, and so excludes names, addresses, phone numbers, medical record numbers, and other uniquely identifying pieces of information. . Email us at helpdesk@ccts.utah.edu for the complete data dictionary.
How to get started?
VisitTo request access please fill out this form: https://ctsiredcap01.brisc.utah.edu/cores-and-services/bmic/cohort-query-tools/trinetxand follow instructions to request account. For questions ccts/redcap/surveys/?s=WANY43XHTN
For further information visit:
https://ctsi.utah.edu/cores-and-services/bmic/cohort-query-tools/trinetx
or contact:
Amaka Ohiku
BMIC Research Application Specialist
OROR email us at: