Research Data Resources Catalog
- Amaka Ohiku (Unlicensed)
ResourceName | Description | AccessType | FormatType | AccessURL | Contact Information |
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IBM MarketScan®Research Databases. | The IBM® MarketScan® Research Databases contain individual-level, de-identified healthcare claims data including clinical utilization, expenditures, insurance enrollment/plan benefit for inpatient, outpatient, prescription drug, and carve-out services for a large population of individuals and their dependents with employer-provided commercial insurance in the United States. | NotAvailable |
| Not Applicable | |
The National Surgical Quality Improvement Program (NSQIP) | The National Surgical Quality Improvement Program (NSQIP) is a surgical outcomes database of the American College of Surgeons (ACS) designed to measure risk adjusted outcomes of surgical interventions so as to compare results between hospitals | NotAvailable |
| Not Applicable | Rupas Das Rupam.Das@hsc.utah.edu |
Trauma Quality Improvement Program (TQIP) | The National Surgical Quality Improvement Program (NSQIP) is a surgical outcomes database of the American College of Surgeons (ACS) designed to measure risk adjusted outcomes of surgical interventions so as to compare results between hospitals | NotAvailable |
| Not Applicable | Rupas Das Rupam.Das@hsc.utah.edu |
The National Trauma Data Bank® (NTDB®) | The National Trauma Data Bank® (NTDB®) is the largest aggregation of U.S. trauma registry data ever assembled. | NotAvailable |
| Not Applicable | Rupas Das Rupam.Das@hsc.utah.edu |
The Healthcare Cost and Utilization Project (HCUP) | The Healthcare Cost and Utilization Project (HCUP, pronounced "H-Cup") is a family of healthcare databases and related software tools and products developed through a Federal-State-Industry partnership and sponsored by the Agency for Healthcare Research and Quality (AHRQ). HCUP databases bring together the data collection efforts of State data organizations, hospital associations, private data organizations, and the Federal government to create a national information resource of encounter-level healthcare data | NotAvailable |
| Not Applicable | Rupas Das Rupam.Das@hsc.utah.edu |
AHA Annual Survey | The American Hospital Association Annual Survey of Hospitals is an annual survey of 6,500 hospitals in the United States. Extensive data is collected on a variety of topics including hospital organizational structure, facilities and services, utilization data, physician arrangements, staffing, and community orientation. | NotAvailable |
| Not Applicable | Rupas Das Rupam.Das@hsc.utah.edu |
Medical Information Mart for Intensive Care(MIMIC) | MIMIC is a publicly available dataset developed by the Laboratory for Computational Physiology that comprises deidentified health data associated with thousands of intensive care unit admissions. The dataset is widely used by investigators and engineers around the world, helping to drive research in clinical informatics, epidemiology, and machine learning. | RemoteAccess |
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UC Irvine Machine Learning Repository | UC Irvine Machine Learning Repository is a collection of databases, domain theories, and data generators that are used by the machine learning community for the empirical analysis of machine learning algorithms. | RemoteAccess |
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National Patient-Centered Clinical Research Network(PCORNET) | PCORnet is a national resource where health data, research expertise, and patient insights are available to deliver fast, trustworthy answers that advance health outcomes. PCORnet research ecosystem offers a fully integrated network where vast, highly representative health data, research expertise, and patient insights are built-in and accessible. | RemoteService | SAS Files | https://redcap01.brisc.utah.edu/ccts/redcap/surveys/?s=WANY43XHTN | |
National COVID Cohort Collaborative (N3C) | The NCATS N3C Data Enclave contains real world data from patients who were tested for COVID-19 or whose symptoms are consistent with COVID-19, as well as data from individuals infected with pathogens such as SARS 1, MERS and H1N1, which can support comparative studies. The data includes information such as demographics, symptoms, lab test results, procedures, medications, medical conditions, physical measurements and more. | RemoteAccess | Data never leaves the enclave | https://redcap01.brisc.utah.edu/ccts/redcap/surveys/?s=WANY43XHTN | |
TriNetX | TriNetX is a global network of healthcare organizations and life science companies, driving real-world research to accelerate the development of life-saving therapies. The network comprises of Biopharmaceutical companies, Healthcare organizations, Clinical Investigators, and other industry players. | RemoteService | CSV | https://redcap01.brisc.utah.edu/ccts/redcap/surveys/?s=WANY43XHTN | |
Accrual to Clinical Trials (ACT) | a federated network of sites from the National Clinical and Translational Science Award (CTSA) Consortium that has been created to significantly increase participant accrual to multi-site clinical trials. The ACT network represents an unprecedented collaboration among diverse CTSA sites. The network has created governance and regulatory frameworks and a common data model to harmonize electronic health record (EHR) data, and deployed a set of Informatics for Integrating Biology and the Bedside (i2b2) data repositories that are linked by the Shared Health Research Information Network (SHRINE) platform. | RemoteService |
| https://redcap01.brisc.utah.edu/ccts/redcap/surveys/?s=WANY43XHTN | |
DEWEY | A platform dedicated to providing research data to academics, with a vision to democratize access to data in the academic market. Dewey streamlines academic access to data from multiple providers, making it easier than ever to leverage valuable datasets from multiple sources in your research. | RemoteService |
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The Utah Population Database (UPDB) | The Utah Population Database (UPDB) at Huntsman Cancer Institute at the University of Utah is one of the world’s richest sources of in-depth information that supports research on genetics, epidemiology, demography, and public health. Since the mid 1970s, researchers at the University of Utah and other institutions have used UPDB to identify and study individuals and families that have higher than normal incidence of cancer or other diseases, to analyze patterns of genetic inheritance, and to identify specific genetic mutations. In addition, demographic studies have shown trends in fertility transition and changes in mortality patterns for both infants and adults. | RemoteService |
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U.S. Department of Health & Human Services(HHS) | The site provides information on the current state of the American health care system. HHS provideshigh-quality, accessible, and timely information for entrepreneurs, researchers, and policy makers to help drive insights and better health outcomes for all. On this site, you can explore data visualizations on hospitalizations, testing, therapeutics and more. | Download |
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The Centers for Medicare and Medicaid Services (CMS) | The Centers for Medicare and Medicaid Services (CMS) provides health coverage to more than 100 million people through Medicare, Medicaid, the Children’s Health Insurance Program, and the Health Insurance Marketplace. CMS seeks to strengthen and modernize the Nation’s health care system, to provide access to high quality care and improved health at lower costs. | Download |
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VA Informatics and Computing Infrastructure (VINCI) | VINCI is an initiative to improve researchers' access to VA data and to facilitate the analysis of those data while ensuring Veterans' privacy and data security. VINCI welcomes all researchers in the VA community to explore the environment and tools available. | RemoteService |
| https://vincicentral.vinci.med.va.gov/SitePages/VINCI_University-VINCI_Data-Data_Sources.aspx | |
HCUPnet | HCUPnet is an online data tool based on data from the Healthcare Cost and Utilization Project (HCUP). The data tool provides healthcare statistics and information for hospital inpatient and emergency department settings, as well as population-based healthcare data on counties. Generate tables and graphs on national and regional statistics and trends for community hospitals in the United States. | Download |
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All Payer Claims Database | All-payer claims databases (APCDs) are large State databases that include medical claims, pharmacy claims, dental claims, and eligibility and provider files collected from private and public payers. APCD data are reported directly by insurers to States, usually as part of a State mandate. |
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Ascension Health | 151 hospitals. Ascension is a nonprofit Catholic health system with around 156,000 associates and 34,000 aligned providers. Systemwide, Ascension offers 2,600 care sites in 21 states and Washington, D.C. The health system provides around 25 million outpatient visits per year and 3.1 million ER visits. |
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Synthea | Synthea is an open-source, fully synthetic set of electronic health record data developed by the MITRE Corporation that can be used to model a vast array of disease states and populations. | Download | HL7 FHIR, C-CDA, and CSV |
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GE Centricity | Centricity is an EMR system from GE Healthcare, aimed at larger practices. Centricity combines clinical and financial management and is designed to be used on tablets and mobile devices, allowing physicians and practice staff to carry a patient’s medical information and update them on the move. | RemoteAccess |
| https://www.ehrinpractice.com/centricity-emr-software-profile-378.html |
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Purpleair | PurpleAir makes sensors that empower Community Scientists who collect hyper-local air quality data and share it with the public. | Download | CSV, API | ||
EPA AQS Data Mart | The EPA AQS Data Mart is designed to make air quality data more accessible and useful to the scientific and technical community. | RemoteAccess | CSV, API |
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Philips ICU and Remote Monitoring Data | Philips eICU is a scalable, centralized solution that extends critical care resources to the bedside via technology, independent of the health facility’s location. This centralized (hub and spoke) model puts an intensivist-led team in a central monitoring facility where they can be responsible for 50–500 remote ICU beds. | RemoteService |
| https://www.usa.philips.com/healthcare/resources/landing/teleicu#_form |
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