Research Data Resources Catalog(Full)
- Amaka Ohiku (Unlicensed)
ResourceName | Description | AccessType | FormatType | Size | AccessURL | Data Availability Years | ContentType | AuthenticationTypes | AuthorizationTypes | Compression | Encryption qualitfiers | ProtecctionType | AvailabilityType | RefinementType | Contact Department | Contact Info |
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IBM MarketScan®Research Databases. | The IBM® MarketScan® Research Databases contain individual-level, de-identified healthcare claims data including clinical utilization, expenditures, insurance enrollment/plan benefit for inpatient, outpatient, prescription drug, and carve-out services for a large population of individuals and their dependents with employer-provided commercial insurance in the United States. | NotAvailable |
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| Not Applicable | 2011-2020(2021 estimated to be added by end of 2022) | Analysis File | none | individual data use agreement | compressed | information not available | fully-anonymized | available | preprocessed data | SPARC College of Medicine | For Continuety purposes: We should make contact info departmental in case the staff leaves. | |
The National Surgical Quality Improvement Program (NSQIP) | The National Surgical Quality Improvement Program (NSQIP) is a surgical outcomes database of the American College of Surgeons (ACS) designed to measure risk adjusted outcomes of surgical interventions so as to compare results between hospitals | NotAvailable |
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| Not Applicable | 2019-2020 |
| none | individual data use agreement | compressed | information not available | fully-anonymized | available | preprocessed data | SPARC College of Medicine | Rupas Das Rupam.Das@hsc.utah.edu |
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Trauma Quality Improvement Program (TQIP) | The National Surgical Quality Improvement Program (NSQIP) is a surgical outcomes database of the American College of Surgeons (ACS) designed to measure risk adjusted outcomes of surgical interventions so as to compare results between hospitals | NotAvailable |
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| Not Applicable | 2010-2016 |
| none | individual data use agreement | compressed | information not available | fully-anonymized | available | analyzed data | SPARC College of Medicine | Rupas Das Rupam.Das@hsc.utah.edu |
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The National Trauma Data Bank® (NTDB®) | The National Trauma Data Bank® (NTDB®) is the largest aggregation of U.S. trauma registry data ever assembled. | NotAvailable |
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| Not Applicable | 2007-2016 |
| none | individual data use agreement | compressed | information not available | fully-anonymized | available | preprocessed data | SPARC College of Medicine | Rupas Das Rupam.Das@hsc.utah.edu |
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The Healthcare Cost and Utilization Project (HCUP) | The Healthcare Cost and Utilization Project (HCUP, pronounced "H-Cup") is a family of healthcare databases and related software tools and products developed through a Federal-State-Industry partnership and sponsored by the Agency for Healthcare Research and Quality (AHRQ). HCUP databases bring together the data collection efforts of State data organizations, hospital associations, private data organizations, and the Federal government to create a national information resource of encounter-level healthcare data | NotAvailable |
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| Not Applicable | State Inpatient Data - 2014 for the following states: Utah, Iowa, Wisconsin, Washington, Oregon, North Carolina, New York, Michigan, Kentucky, Florida, Colorado, Arizona |
| none | individual data use agreement | compressed | information not available | fully-anonymized | available | preprocessed data | SPARC College of Medicine | Rupas Das Rupam.Das@hsc.utah.edu |
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AHA Annual Survey | The American Hospital Association Annual Survey of Hospitals is an annual survey of 6,500 hospitals in the United States. Extensive data is collected on a variety of topics including hospital organizational structure, facilities and services, utilization data, physician arrangements, staffing, and community orientation. | NotAvailable |
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| Not Applicable | 2016 |
| none |
| compressed | information not available | fully-anonymized | available | analyzed data | SPARC College of Medicine | Rupas Das Rupam.Das@hsc.utah.edu |
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Medical Information Mart for Intensive Care(MIMIC) | MIMIC is a publicly available dataset developed by the Laboratory for Computational Physiology that comprises deidentified health data associated with thousands of intensive care unit admissions. The dataset is widely used by investigators and engineers around the world, helping to drive research in clinical informatics, epidemiology, and machine learning. | RemoteAccess |
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| 2001-2019 |
| simple factor login | individual data use agreement |
| not encrypted | fully-anonymized | available | preprocessed data |
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UC Irvine Machine Learning Repository | UC Irvine Machine Learning Repository is a collection of databases, domain theories, and data generators that are used by the machine learning community for the empirical analysis of machine learning algorithms. | RemoteAccess |
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| available | preprocessed data |
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National Patient-Centered Clinical Research Network(PCORNET) | PCORnet is a national resource where health data, research expertise, and patient insights are available to deliver fast, trustworthy answers that advance health outcomes. PCORnet research ecosystem offers a fully integrated network where vast, highly representative health data, research expertise, and patient insights are built-in and accessible. | RemoteService | SAS Files |
| https://redcap01.brisc.utah.edu/ccts/redcap/surveys/?s=WANY43XHTN | 2009-2019 |
| none | institutional data use agreement | compressed |
| fully-anonymized | available | analyzed data | Clinical and Translational Science(CTSI) Biomedical Informatics Core(BMIC) College of Medicine |
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National COVID Cohort Collaborative (N3C) | The NCATS N3C Data Enclave contains real world data from patients who were tested for COVID-19 or whose symptoms are consistent with COVID-19, as well as data from individuals infected with pathogens such as SARS 1, MERS and H1N1, which can support comparative studies. The data includes information such as demographics, symptoms, lab test results, procedures, medications, medical conditions, physical measurements and more. | RemoteAccess | Data never leaves the enclave |
| https://redcap01.brisc.utah.edu/ccts/redcap/surveys/?s=WANY43XHTN | 2020-Present |
| multiple factor login | individual data use agreement |
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| fully-anonymized | available |
| Clinical and Translational Science(CTSI) Biomedical Informatics Core(BMIC) College of Medicine |
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TriNetX | TriNetX is a global network of healthcare organizations and life science companies, driving real-world research to accelerate the development of life-saving therapies. The network comprises of Biopharmaceutical companies, Healthcare organizations, Clinical Investigators, and other industry players. | RemoteService | CSV |
| https://redcap01.brisc.utah.edu/ccts/redcap/surveys/?s=WANY43XHTN |
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| multiple factor login | institutional data use agreement | compressed | not encrypted | fully-anonymized | available | raw data | Clinical and Translational Science(CTSI) Biomedical Informatics Core(BMIC) College of Medicine |
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Accrual to Clinical Trials (ACT) | a federated network of sites from the National Clinical and Translational Science Award (CTSA) Consortium that has been created to significantly increase participant accrual to multi-site clinical trials. The ACT network represents an unprecedented collaboration among diverse CTSA sites. The network has created governance and regulatory frameworks and a common data model to harmonize electronic health record (EHR) data, and deployed a set of Informatics for Integrating Biology and the Bedside (i2b2) data repositories that are linked by the Shared Health Research Information Network (SHRINE) platform. | RemoteService |
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| https://redcap01.brisc.utah.edu/ccts/redcap/surveys/?s=WANY43XHTN | 2012-Present |
| multiple factor login | institutional data use agreement |
| not encrypted | fully-anonymized | available | preprocessed data | Clinical and Translational Science(CTSI) Biomedical Informatics Core(BMIC) College of Medicine |
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DEWEY | A platform dedicated to providing research data to academics, with a vision to democratize access to data in the academic market. Dewey streamlines academic access to data from multiple providers, making it easier than ever to leverage valuable datasets from multiple sources in your research. | RemoteService |
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| individual data use agreement |
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| fully-anonymized | available |
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The Utah Population Database (UPDB) | The Utah Population Database (UPDB) at Huntsman Cancer Institute at the University of Utah is one of the world’s richest sources of in-depth information that supports research on genetics, epidemiology, demography, and public health. Since the mid 1970s, researchers at the University of Utah and other institutions have used UPDB to identify and study individuals and families that have higher than normal incidence of cancer or other diseases, to analyze patterns of genetic inheritance, and to identify specific genetic mutations. In addition, demographic studies have shown trends in fertility transition and changes in mortality patterns for both infants and adults. | RemoteService |
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| 1700s-present |
| multiple factor login | institutional data use agreement |
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| other | available |
| Huntsman Cancer Institute |
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U.S. Department of Health & Human Services(HHS) | The site provides information on the current state of the American health care system. HHS provideshigh-quality, accessible, and timely information for entrepreneurs, researchers, and policy makers to help drive insights and better health outcomes for all. On this site, you can explore data visualizations on hospitalizations, testing, therapeutics and more. | Download |
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| none | none |
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| fully-anonymized | available | preprocessed data | U.S. Department of Health & Human Services(HHS) |
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The Centers for Medicare and Medicaid Services (CMS) | The Centers for Medicare and Medicaid Services (CMS) provides health coverage to more than 100 million people through Medicare, Medicaid, the Children’s Health Insurance Program, and the Health Insurance Marketplace. CMS seeks to strengthen and modernize the Nation’s health care system, to provide access to high quality care and improved health at lower costs. | Download |
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| none | none |
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| fully-anonymized | available | analyzed data | The Centers for Medicare and Medicaid Services (CMS) |
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VA Informatics and Computing Infrastructure (VINCI) | VINCI is an initiative to improve researchers' access to VA data and to facilitate the analysis of those data while ensuring Veterans' privacy and data security. VINCI welcomes all researchers in the VA community to explore the environment and tools available. | RemoteService |
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| https://vincicentral.vinci.med.va.gov/SitePages/VINCI_University-VINCI_Data-Data_Sources.aspx |
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| multiple factor login |
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| fully-anonymized | available | analyzed data | ? |
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HCUPnet | HCUPnet is an online data tool based on data from the Healthcare Cost and Utilization Project (HCUP). The data tool provides healthcare statistics and information for hospital inpatient and emergency department settings, as well as population-based healthcare data on counties. Generate tables and graphs on national and regional statistics and trends for community hospitals in the United States. | Download |
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| 2006-present |
| none | none |
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| fully-anonymized | available | other | Agency for Healthcare Research and Quality |
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